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insulin whores unite

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Medical Tattoos? [19 Jun 2015|06:08pm]

thatsmypurse
Anyone have a medical tattoo? Thoughts and opinions on them?
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Save me from the ignorant people [06 Apr 2012|12:00am]

rainbow_goddess
Today I made the mistake of mentioning in my LJ that I would like to lose some weight. My post was mainly about how I could really use some self-discipline so that instead of sitting on the couch (or in the computer chair) all day, I would actually get up and go out and get some exercise and, in the process, get away from food temptation at home.

However, someone on my friends list decided it was time to play weight-loss expert and told me helpfully (not) that bariatric surgery has been proven to cure diabetes and that I should consider it.

Honestly? Weight-loss surgery? Never mind that the studies about bariatric surgery were for people with Type 2 diabetes, which shows that no matter how many times I post in my LJ that I have Type 1, people still don't listen. But recommending weight-loss surgery just because I want to lose about 20 kilograms at the most? I actually considered reporting that LJ "friend" for spam because I was convinced someone had hacked his account, because his suggestion was so far out of left field.

So tired of the blame game [23 Jan 2012|03:31pm]

rainbow_goddess
Whenever there is a news story about health care, you always get the letters to the newspaper from people who have bright ideas about how to "fix" the health care system. These ideas are usually along the lines of "make people who cause their own diseases pay for it themselves." And by "people who cause their own diseases" they almost always mean "people with diabetes."

I constantly see people with diabetes being labelled as "fat" "lazy" "eat too much" "junk food junkies" "sit on the couch all day" etc. etc. The newspaper itself doesn't help. Every week there's a news story about diabetes that immediately mentions obesity, or a news story about obesity that immediately mentions diabetes. No one distinguishes between the different types. They do not mention genetics. They do not mention that not all cases of Type 2 are caused by obesity. They never mention Type 1, unless it's in relation to a JDRF fundraiser put on for children with diabetes, who of course magically are cured of their diabetes as soon as they turn 19 years old. And they always call it "juvenile" diabetes.

I am so sick of this that I want to take out full-page newspaper ads that proclaim in big print what the differences are between the different types of diabetes. I want to buy huge billboards -- except billboards aren't allowed in my city -- and post pictures on them of skinny people who have diabetes. I have written dozens of letters to my local newspaper in the last few years. I write one every time there is a news story that mentions obesity + diabetes without mentioning that there is more than one type. But nothing ever changes.
13 comments|post comment

What can you say? [14 Dec 2011|10:05pm]

rainbow_goddess
Quite frequently when someone finds out that I have diabetes and that I take shots, their reaction is along the lines of: "I could NEVER take shots! I'd DIE if I had to take shots!!!!!!!!"

My usual response to that is, "I would die if I DIDN'T take shots." However, I've been told that it's rude to say that. Is there anything not-rude that you can say to someone says that?
19 comments|post comment

Diabetes-related holiday humour [13 Dec 2011|10:59am]

rainbow_goddess
Diabetes Christmas songsCollapse )
3 comments|post comment

Insurance [19 Jul 2011|02:48am]

kyoulove
Hi everyone, I stumbled across this group and wondered if anyone could offer some advice. I was diagnosed as a type 1 diabetic when I was 9, and by the end of November, I will be turning 25 and I will be off my Mom's insurance. I am currently working but they won't let me work more than 30 hours so they don't have to offer me insurance. I am trying to apply for a full time position within the company but I don't know if that will happen by the cut off date. I currently live at home so rent may be negotiable, but the problem is my twin doesn't and she is also diabetic (we were diagnosed the same day). Does anyone have any suggestions for a general insurance we could apply to that offers good co-pay rates for diabetic supplies? My older sister is also a type 1 diabetic and for a year didn't have insurance and really neglected her treatment to the point that she lost a considerable amount of weight and her stomache almost shut down. I do not want something like that to happen to me or my twin so any suggestions would be much appreciated.
13 comments|post comment

I Challenge Diabetes [12 Jul 2011|11:11pm]

hugnkissable
I wanted to share some amazing experiences with diabetes that I've been having for some time.

There's an incredible group in Canada called I Challenge Diabetes.
ICD is founded by Type I Diabetic & Olympic/PanAm rower, Chris Jarvis.
Every day, Chris inspires me to, not only take better control of my diabetes, but to lead a healthier and more active lifestyle.

I Challenge Diabetes runs active events across Canada for youth and adults living with diabetes.
This summer, alone, I have gone rock climbing, taken spin classes, rowed viking boats, cycled 140kms from Toronto to Niagara-on-the-Lake and hiked the Niagara Escarpment with I Challenge Diabetes!
Through "experiential diabetes education," Chris and event leaders help participants to understand their diabetes management for the activities as well as for everyday life.

They have a bunch more events planned for the summer in western Canada and Ontario so check out the facebook and website and see if you can join in.
http://www.ichallengediabetes.org
http://www.facebook.com/lchallengediabetes

Most events are free or only a minimal charge!

Hope to meet some of you out there!

*this will be cross posted at some point - my apologies in advance*
14 comments|post comment

what kind of doctor writes your diabetes prescriptions? [24 Jun 2011|11:29am]

tellmeplease
My kids just 'aged out' of the place they've always gone for their diabetes 'care'.

Do family practitioners/general practitioners do diabetes and write the prescriptions for insulin and testing supplies in the US, or do I need to find some kind of specialist? If so, what's the specialty called?

Thanks
8 comments|post comment

Found on tumblr [02 May 2011|12:05am]

rainbow_goddess
This is from the blog http://chronicillnesscat.tumblr.com/

Diabetes-related picture behind cutCollapse )
1 comment|post comment

[12 Apr 2011|02:09pm]

professoryaffle
Hello

I have recently started on an insulin pump and I am still getting used to the settings, having a boring no carb day to day to see how the basal rate is handling my natural variations

A couple of questions for people

How many different basal rates do you have, my machine allows up to 5 and I suspect I will need at least 2 to account for hormonal variations in insulin resistance over a month

How do you change your basal rate when shifting time zones?

How much do you use extended and multiwave bolus types, I try and use extended if I am doing more than 6 units but I am not sure how long to spread the extended bolus over or when its more appropriate to do a multiwave version

Any tips or suggestions would be much appreciated

edit:sorry for any confusion over the basal rate question, I mean how it varies from day to day or week to week rather than within a day

xposted to diabetes
4 comments|post comment

insulin pump tips [25 Feb 2011|11:44am]

professoryaffle
Any good tips for a someone who is about to become an insulin pump user?

I have my first appointment to get training and start with saline in just over a week

I will be using the accucheck combo system

thanks
8 comments|post comment

[24 Feb 2011|02:33pm]

thatsmypurse
I am losing my battle with Type 1 Diabetes and I am just pissed off and need to vent to people who aren't going to say, "Well, did you change your port site?"
The rant partCollapse )
So 2 and 3 weeks ago it was in the low phase of constant eating and nothing helping, now it's in the high phase. Right now my bloodsugar is 501 and I feel horribly sick. I cannot understand what is going on or why this is happening and all the endo can tell me is to not eat and do bloodsugars constantly. Should I just not eat for a few days and see if things get better??
Now I'm wondering if it has something to do with my menstrual cycle. Have any of you ladies experienced something like this and figured out how to help yourself through it?
Are any of you from Germany or have lived here and dealt with the doctors and could give me some pointers? My German isn't great, I'm taking classes though, and my Endo's English is fair at best so it does make explaining problems and getting answers that much more difficult. I may have to just go back to the US and get help there :-/
I apologize for this being completely disjointed and random. Thank you for any advice or help you can give me, I am struggling here!
10 comments|post comment

[10 Feb 2011|08:24pm]

jjlv64
has anyone had any experiences with either nutrasystem or jenny craig? im kind of sort of considering them, and i saw nutrasystem has a T2 focused meal plan... but im a T1 so... just putting out some feelers.

OR, has anyone had weight loss experience with symilan? i started it a while ago, quit using it because i was lazy and didnt want to do the extra thinking to calorie count along with carb counting (also im on a pump and somehow even when i remember to bolus i would forget to do the additional shot).

if by any chance any of you have experience with BOTH of these things that would be wonderful.

Thanks!

(ps T1, pumping... not horribly overweight but id like to lose 20 pounds...and i generally eat like crap [the taco bell and dunkin donuts ladies know my order haha])
3 comments|post comment

Medical alert bracelet text [12 Jan 2011|01:20pm]

dillemma
Hi all!

For those of you who wear medical alert bracelets/IDs (not the real Medicalert ones that I can't afford) - what do you write on them? I'm finally getting a new one (my current one is illegible, which seems a bit counterproductive), but can't figure out what's relevant. Right now I've got my name on the front side and:

Insulin Dependent
Diabetes - Insulin Pump
Bipolar II - Lamotrigine

on the back side. (I'm also debating the bipolar part, don't know if that's relevant to anyone else here. I think it's probably important to have the medication on there, and I'd need to specify that it's not for seizures. I worry about snap judgments of coworkers/friends, though [which I know some of you will probably find ridiculous/be annoyed by, but bear with me here].)

Thanks!
13 comments|post comment

[07 Dec 2010|10:21pm]

whatweneversaid
I've been diabetic for 14 years, and on a pump for nine years.  I've accepted having diabetes - it's part of my life.

Except right now, I just put a set in that hurt quite a bit (hit a vein, I think), and started looking around my tummy, butt, and thighs for a new spot.  Between my sensor and the pump, I'm running out of skin.  I have these puffy scar tissue things on my tummy (I know they go away over time, but I hate how it looks and feels), and I don't know where to put my pump set anymore.

I really just want to go without the damn pump for a day.  I realized just now, I haven't been without this thing attached to my side, the little tube in me, for 9 years.  And no, I'm not going to deal with the poor control I get when I try to take shots just for a little comfort.  Just felt like I needed to put that out there where there are people who might understand.  I've never really felt this specific emotion before.
15 comments|post comment

[07 Dec 2010|04:42pm]

tellmeplease
thank you for all the glucagon answers.
I have a question about education alternatives.

My health insurance (in the US) covers my son for free until he's 21, or , until he's 23 IF he's a full-time student. He's become OCD(contamination phobia) in recent times, so getting him to sit in a classroom isn't going to work.
I'd rather pay money for tuition than health insurance premiums for the next couple of years (he's 20 !/2, so we need to come up with a decision soon).
Does anyone know of online schools/correspondence schools that are legit and that are respectable enough to be accepted by my health insurance (like maybe schools that the VA accepts for veterans benefits-is there a list of non-resident schools like that?).
I need to be able to give the insurer a letter from the school, after he enrolls, stating his expected graduation date, so just short courses probably wouldn't do.
He's been doing individual dvd courses at home, but not as part of any organized program.
7 comments|post comment

glucagon question [06 Dec 2010|01:01pm]

tellmeplease
glucagon questions
I've been carrying glucagon around with me for 13 years, in case my son should need it, and he hasn't needed it so far. His blood sugar goes down in the 20's and 30's occasionally, but he stays pretty rational, besides staying conscious. I buy fresh ones as they expire-when I buy it, sometimes the expiration date is only a couple of months away, other times it's good for 8 or 9 months from purchase.

I'm wondering how common needing to use this stuff is-are some people more prone to passing out from low blood sugar than others? Are there situations that make it more likely to be needed?

If you've actually used the stuff, was it in particular situations-during colds,flu etc? because of intense exercise? forgetting to eat? drinking alcohol? taking other meds besides those for diabetes? having underlying liver damge? other situations?

If you've used it, has it been once, many times, early in the diabetes or years into it, during times when you were having lots of highs and lows or during times of relative control, etc.

Thanks for any input.
30 comments|post comment

Type 1 Diabetes Research [05 Oct 2010|03:51pm]

defend2

Hello, we are ePharmaSolutions and we are helping Tolerx (www.tolerx.com) spread the word about their clinical research study for type 1 diabetes, DEFEND-2.  We are posting information on diabetes support group discussion boards in an attempt to raise awareness of the DEFEND-2 trial.  Everything we post online has been reviewed and approved by BioMed Institutional Review Board (www.biomedirb.com) to ensure users receive appropriate information in an appropriate manner. 

 

DEFEND-2 is being conducted to find out whether a monoclonal antibody, otelixizumab, can “reprogram” the immune system so it doesn’t attack insulin-producing beta cells.

 

The study description is listed on www.ClinicalTrials.gov (a service of the U.S. National Institute of Health that is a registry of federally and privately funded clinical trials). You can find the DEFEND-2 study listing here: http://www.clinicaltrials.gov/ct2/show/study/NCT01123083

 

If you would like to learn more about this clinical research study please visit our website www.DefendAgainstDiabetes.com,  email us (DEFEND2@ePharmaSolutions.com), or call us at 1-866-580-3486.

 

If you, as a member of the diabetes community, have any suggestions on how to better deliver our message, please do not hesitate to contact us.

 

Thank you,

Vanessa

The DEFEND-2 Team

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JDRF and Adults with Type 1 [14 Sep 2010|10:36am]

brwneyedgrl1211
We've discussed on here before that JDRF often focuses so heavily on children with diabetes that they provide little resources for these children once they grow up to become adults with type 1 diabetes (or for people that are diagnosed with T1 as adults). Well, one blogger took action, and JDRF noticed. (It took them a few months, but hey - better late than never!) The blogger is Scott Strange, and this is his "Open Letter to JDRF": http://strangelydiabetic.com/2010/07/13/an-open-letter-to-the-jdrf/

Here is JDRF's initial response: http://juvenation.org/blogs/advocacy/archive/2010/09/13/jdrf-advocacy-and-the-adult-type-1-audience.aspx
Scott's guest post on SixUntilMe discusses a conversation he had with JDRF after his first post: http://sixuntilme.com/blog2/2010/09/guest_post_after_an_open_lette.html#comments

And here is part two of JDRF's response: http://juvenation.org/blogs/advocacy/archive/2010/09/14/part-2-jdrf-advocacy-and-the-adult-type-1-audience.aspx
Finally, Scott's "part II" followup to the SixUntilMe post: http://strangelydiabetic.com/2010/09/14/after-an-open-letter-the-jdrf-opens-up-%e2%80%93-part-ii/

Here is our chance! JDRF is encouraging us to send comments their way: what they are lacking for adults with type 1, how they can improve advocacy for adult type 1s, resources they provide us, etc. You can post comments at Scott's blog or one of the two Juvenation.org links above.

I have always had a great experience with my local JDRF chapter; we even have an "Adults with Type 1 and they Significant Others" group that meets for dinner every few months. But I know the national organization and many other local groups are almost exclusively child-focused. I'm so glad someone addressed the issue, and JDRF responded, ready to listen.

(cross-posted to diabetes, insulin pumpers, and insulin whores)

1 comment|post comment

Expiration Dates [28 Aug 2010|06:31pm]

sparrowbomb
Hi, I was diagnosed with Type 1 in february of this year. I haven't had much trouble with my insulin pens until recently.

I use Novalog pens and I switched to a fresh one last week because it seemed my previous pen had spoiled. Perhaps the summer heat? But now this new pen also seems less effective even though I've been more careful about keeping it in a cool place during the day.

I remember the doctor telling me something about insulin expiration dates but it's a little fuzzy. Something like, the pens are only good for 4 months even in the fridge? Is that right? I know insulin is only good for 28-30days once they're being used, but what about while they're being stored? The box expiration dates for the suspected spoiled pens are still a couple months away. They've been in the fridge for roughly 3-4 months.

Thanks in advance~
8 comments|post comment

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